"Europa News" fue el telediario escolar que realizamos hace varios cursos con un grupo de segundo de primaria. En esta actividad participó todo el alumnado, incluido el de aula de PT, como podéis ver en este vídeo, donde aparece un alumno con una "enfermedad rara" (síndrome de Pfeiffer).

"Europa News" fue el telediario escolar que realizamos hace varios cursos con un grupo de segundo de primaria. En esta actividad participó todo el alumnado, incluido el de aula de PT, como podéis ver en este vídeo, donde aparece un alumno con una "enfermedad rara" (síndrome de Pfeiffer).

Prince’s Ex-Wife Recalls the Birth and Heartbreaking Death of Their Son Amiir

Prince’s Ex-Wife Recalls the Birth and Heartbreaking Death of Their Son Amiir

Matthew et Marshall sont des jumeaux atteints du syndrome de Pfeiffer. Les petits ayant été abandonnés à la naissance, découvrez ce qu'ils sont devenus.

Matthew et Marshall sont des jumeaux atteints du syndrome de Pfeiffer. Les petits ayant été abandonnés à la naissance, découvrez ce qu'ils sont devenus.

Over Pfeiffer: ME of het Chronisch vermoeidheidssyndroom (CVS) is een zeer beperkende aandoening. Welke oplossingen kan klassieke homeopathie bieden voor deze ziekte?

Sonhar que você está acordando em seu sonho indica que algo está faltando ou está faltando em sua vida. Há um aspecto da sua vida que você não está utilizando.

Pfeiffer Syndrom

Pfeiffer Syndrom

I personally feel Manuela wanted children with Prince but after losing a son to a genetic disorder Pfeiffer Syndrome, that comes from the paternal side. I'm sure he didn't want to risk having anymore children. Just my personal opinion.

I personally feel Manuela wanted children with Prince but after losing a son to a genetic disorder Pfeiffer Syndrome, that comes from the paternal side. I'm sure he didn't want to risk having anymore children. Just my personal opinion.

My beautiful friend Genny has been featured on the first pages of the CCA Newsletter!   We met this last June in Florida at the Annual Retreat. She was also born with a craniofacial disorder called Pfeiffer Syndrome.   Genny is so incredibly brave and isn't afraid to express her feelings either. It's an honor to know this charismatic young lady.  P.S. I love the picture of all three of us including Barbara. We're all beautiful. ❤  #craniofacial #treachercollins  #pfeiffersyndrome

My beautiful friend Genny has been featured on the first pages of the CCA Newsletter! We met this last June in Florida at the Annual Retreat. She was also born with a craniofacial disorder called Pfeiffer Syndrome. Genny is so incredibly brave and isn't afraid to express her feelings either. It's an honor to know this charismatic young lady. P.S. I love the picture of all three of us including Barbara. We're all beautiful. ❤ #craniofacial #treachercollins #pfeiffersyndrome

Jameson has Pfeiffer syndrome, a genetic disorder which affects the shape of the head and face.

Texas mother fights back after son's photo used in meme

Jameson has Pfeiffer syndrome, a genetic disorder which affects the shape of the head and face.

The symptoms are different for different disorders. Some of them cause bone growth problems. People with bone growth disorders may have brittle bones or bones that are too long or too short. Some cause people to be unusually tall (Marfan syndrome) or short (chondrodysplasias, osteogenesis imperfecta), or to have head and facial structure malformations (Apert syndrome, Pfeiffer syndrome). In others, joints may be stiff or immobile (fibrodysplasia ossificans progressiva or FOP).

The symptoms are different for different disorders. Some of them cause bone growth problems. People with bone growth disorders may have brittle bones or bones that are too long or too short. Some cause people to be unusually tall (Marfan syndrome) or short (chondrodysplasias, osteogenesis imperfecta), or to have head and facial structure malformations (Apert syndrome, Pfeiffer syndrome). In others, joints may be stiff or immobile (fibrodysplasia ossificans progressiva or FOP).

Pfeiffer Syndrome Type 2 - ENT Wellbeing Sydney

Pfeiffer Syndrome Type 2

Pfeiffer Syndrome Type 2 - ENT Wellbeing Sydney

Explained: The crippling genetic disorder that killed Prince's son #DailyMail

Explained: The crippling genetic disorder that killed Prince's son

Explained: The crippling genetic disorder that killed Prince's son #DailyMail

Orthotown - Maxillary expansion in Pfeiffer Syndrome patient?

Orthotown - Maxillary expansion in Pfeiffer Syndrome patient?

Prince began a relationship with his first wife, dancer Mayte Garcia, when she was 18 and he was 32. They married on Valentine’s Day 1996, four years later. They had a son later that year, who was born with Pfeiffer syndrome and passed away after only a week. The pair then divorced in 1999.

Prince began a relationship with his first wife, dancer Mayte Garcia, when she was 18 and he was 32. They married on Valentine’s Day 1996, four years later. They had a son later that year, who was born with Pfeiffer syndrome and passed away after only a week. The pair then divorced in 1999.

Be A Hope Fairy! Purchase any Dani La Hadita products and you will be supporting the grass roots fund raising efforts for Daniela Munoz Ojeda.   Daniela is a 6-year-old girl who is diagnosed with Pfeiffer Syndrome and requires craniofacial surgery which is scheduled for June 2012.   Art created by Isa Zapata, the copyrights of the painting were donated to Daniela's family to help them raise funds for her surgery.   100% of the royalties of the sale of any "Dani la Hadita" product, will be…

Be A Hope Fairy! Purchase any Dani La Hadita products and you will be supporting the grass roots fund raising efforts for Daniela Munoz Ojeda. Daniela is a 6-year-old girl who is diagnosed with Pfeiffer Syndrome and requires craniofacial surgery which is scheduled for June 2012. Art created by Isa Zapata, the copyrights of the painting were donated to Daniela's family to help them raise funds for her surgery. 100% of the royalties of the sale of any "Dani la Hadita" product, will be…

Pinterest
Pesquisar