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Cooling off at the beach - hello daylight savings!!!! #hopeforislaandjude by hopeforislaandjude

Cooling off at the beach - hello daylight savings!!!! #hopeforislaandjude by hopeforislaandjude

A cheeky grin and another spectacular day at the beach! #hopeforislaandjude by hopeforislaandjude

A cheeky grin and another spectacular day at the beach! #hopeforislaandjude by hopeforislaandjude

Little farm kids! Isla and Jude visited their friend Kyuss yesterday at his grandparents farm. Kyuss has Sanfilippo Syndrome like Isla and Jude but yesterday Sanfilippo was far from everyone's mind they were just little mates playing and feeding cows. #hopeforislaandjude #hopeforkyuss by hopeforislaandjude

Little farm kids! Isla and Jude visited their friend Kyuss yesterday at his grandparents farm. Kyuss has Sanfilippo Syndrome like Isla and Jude but yesterday Sanfilippo was far from everyone's mind they were just little mates playing and feeding cows. #hopeforislaandjude #hopeforkyuss by hopeforislaandjude

We are full of admiration for the unaffected siblings of children with Sanfilippo. Lucy is the little sister of Jayda. Sometimes Lucy calls Jayda her "baby". The roles of big sister little sister have sadly been reversed. Jayda no longer speaks or walks but brings her family much joy. You might remember Jayda and her beautiful family from the country town of Gunnedah. They were featured two years ago on tv program 'The Project'. by sfcfoundtn

We are full of admiration for the unaffected siblings of children with Sanfilippo. Lucy is the little sister of Jayda. Sometimes Lucy calls Jayda her "baby". The roles of big sister little sister have sadly been reversed. Jayda no longer speaks or walks but brings her family much joy. You might remember Jayda and her beautiful family from the country town of Gunnedah. They were featured two years ago on tv program 'The Project'. by sfcfoundtn

Cousin love. A great afternoon with Archie!#hopeforislaandjude by hopeforislaandjude

Cousin love. A great afternoon with Archie!#hopeforislaandjude by hopeforislaandjude

Children are often the Sanfilippo Children's Foundation's most avid supporters exercising philanthropy and a community spirit well ahead of their years. Thank you to this little pint-sized philanthropist Alice Yardley who ran and walked 5kms in the Manly Scenic Fun Run last weekend to raise funds for the SCF and in honour of her friends Iska and Jude. Thank you Alice. Super proud! #hopeforislaandjude #manlyscenicfunrun #savinglives #clinicaltrials by sfcfoundtn

Children are often the Sanfilippo Children's Foundation's most avid supporters exercising philanthropy and a community spirit well ahead of their years. Thank you to this little pint-sized philanthropist Alice Yardley who ran and walked 5kms in the Manly Scenic Fun Run last weekend to raise funds for the SCF and in honour of her friends Iska and Jude. Thank you Alice. Super proud! #hopeforislaandjude #manlyscenicfunrun #savinglives #clinicaltrials by sfcfoundtn

“Isla is five years old, her brother Jude, is just three. They have a fatal disease. There is NO cure. But there is HOPE, it starts with YOU.  PLEASE SHARE…”

“Isla is five years old, her brother Jude, is just three. They have a fatal disease. There is NO cure. But there is HOPE, it starts with YOU. PLEASE SHARE…”

Sanfilippo Children's Foundation SPREADING HOPE... Thank you to the Morrice family in Ferny Hills Queensland for bravely sharing their Sanfilippo story. You can read about the Hope for Alec campaign in today's 'Northside Chronicle'. The headline says it all: "Family rallying to help Alec". Alec has Sanfilippo Type C. #hopeforalec #peoplepoweredmedicine #togetherwearestronger by sfcfoundtn

Sanfilippo Children's Foundation SPREADING HOPE... Thank you to the Morrice family in Ferny Hills Queensland for bravely sharing their Sanfilippo story. You can read about the Hope for Alec campaign in today's 'Northside Chronicle'. The headline says it all: "Family rallying to help Alec". Alec has Sanfilippo Type C. #hopeforalec #peoplepoweredmedicine #togetherwearestronger by sfcfoundtn

Happy Father's Day to Isla & Jude's dad Al (aka Tick). #hopeforislaandjude thanks for this gorgeous pic @sammywholesome @captainandthegypsykid @kenyonbatterson by hopeforislaandjude

Happy Father's Day to Isla & Jude's dad Al (aka Tick). #hopeforislaandjude thanks for this gorgeous pic @sammywholesome @captainandthegypsykid @kenyonbatterson by hopeforislaandjude

A giant cheque presented to the SCF from Kimberly Clark Australia today from this year's national KCA Walkathon and company-wide fundraising campaign. Pictured from left: Abby Phillips brainchild of the Sanfilippo KCA Walk; Lissa Chen the highest fundraiser raising $13000 via Shave for Sanfilippo; and SCF Operations Manager Nicole Fasseau. #KCAwalk2015 #shaveforsanfilippo #raredisease #childrenscharity  #corporategiving #peoplepoweredmedicine #Findinggems #giantcheque #philanthropy…

A giant cheque presented to the SCF from Kimberly Clark Australia today from this year's national KCA Walkathon and company-wide fundraising campaign. Pictured from left: Abby Phillips brainchild of the Sanfilippo KCA Walk; Lissa Chen the highest fundraiser raising $13000 via Shave for Sanfilippo; and SCF Operations Manager Nicole Fasseau. #KCAwalk2015 #shaveforsanfilippo #raredisease #childrenscharity #corporategiving #peoplepoweredmedicine #Findinggems #giantcheque #philanthropy…

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